Nancy Golin (center) with her parents Jeffrey and Elsie.

UPDATE 5/6/2017 by Jeffrey Golin:

At this moment she is still in SARC custody, at Good Samaritan Hospital in San Jose, a good hospital, fighting for her life, and we are going to be able to see her there tomorrow.

Her weight has dropped disastrously now, and she is having seizure after seizure and she is on 32 kinds of medication from what I have heard. SARC Directors have contacted me, to be fair, and are seeking to involve us, but only in a limited way. After a week of dickering we are finally going to be able to visit with her at the hospital without being denied medical information from the doctors. A week ago we were “offered” supervised visits at the hospital, without being able to discuss her health situation. We held out for better conditions and SARC relented.

We still will not be able to get her medical records and they won’t let us take photos of any kind of her. They don’t want anyone to see her condition or get evidence that she has been abused, and don’t want us to take more pictures to show the judge again. They cut off visits for two months in order to keep us from taking more photos or writing any more declarations to the court.

Remember, this all started 16 years ago now. it is so ironic. Everything they falsely claimed we did, they actually did, and worse. There was never any justification for it in the first place, except they claimed that we did not have her seizures under control. That is impossible anyway, but even after 16 years she still has intractable seizures under their control, with all their vaunted expertise, and yet they still hold on to her and pretend we are dangerous to her.

Let’s look back at who was really dangerous, in retrospect…

They may have even been covering up her seizures at the home she was in, in order to claim they still were doing a better job. But after 9 different incidents where she fell and broker her arm or showed up at visits with a black eye, scalded her arm, and starved her, they still won’t let us move her to a decent home near us in Fresno where we live, let alone let her come home to live with us where she can get the best care and love.

We went to court with our attorney five times since last October, filing declarations and photos showing her repeated injuries and her dangerous environment, with incident reports, asking the judge to move her away from SARC territory on an emergency basis but even the new judge, Judge Pichon, in Santa Clara County Probate Court, keeps kicking the can down the road to a new status review date, “to see how it goes.” Next hearing date is in June. The probate investigator, MariJo Deleon, has given SARC her blessing in her review to continue the conservatorship, parroting SARC’s lies. Will she make it that long?

I have alleged for years that SARC owns that court, from my observations and the situation there is completely corrupt, and I’m not afraid to say it. We cannot get her moved away from there because SARC controls the transfer process, and they are making sure that no other Regional Center has any placement anywhere in the state but in SARC territory. Now that they can claim she is “medically fragile” that limits choices of possible placements but it surely does not eliminate all possible placements anywhere in California.

The story as bad as it is doesn’t even touch on the most egregious parts. For one thing, we discovered during depositions that Nancy was not really wandering for 15 hours all night at all, as we were originally brought to believe. In fact, police records showed that Nancy was picked up around 11-12pm, and held all night without notice to us while we searched. Instead of being gone for 15 hours she actually was held in police custody or somewhere else in secret so they could claim we had “allowed” her to wander all night, to make us look really bad. It was a police set-up. We saw the evidence hiding in plain sight for years and refused to believe that any agency could get away with being so corrupt.

It makes complete sense. It was all preplanned. It would be impossible for Nancy to be wandering the street for that long without someone reporting it, as they always did. We were unable to find her because the police already had her. It was a calculated conspiracy to get us arrested on trumped up charges in order to kidnap her and keep us in jail while they applied for conservatorship without our opposition, and create enough fabricated evidence for the whole plot to hang together. The cooked up excuses to shut down my business in order to keep us poor while they did this. When we got press coverage, they had us arrested. The police officer that cooked all this up, Det. Kratzer, now works for the local office of the FBI, and got herself a crooked attorney to get her off.

Instead, someone needed to crack down on this corruption in California, and instead of promoting the people that did this, there should be arrests made of the plotters.

California Holds Medically Kidnapped Adult Daughter for 14 Years

by Health Impact News/MedicalKidnap.com Staff

Jeffrey and Elsie Golin have been fighting against the State of California and California’s San Andreas Regional Center (SARC) for nearly fifteen years to have their daughter returned to them. SARC is a community-based, private nonprofit corporation that is funded by the State of California to serve people with developmental disabilities and works with Stanford University. The Golins are fighting for their autistic daughter Nancy’s right to be able to return home to live with them, and fighting for the right to advocate for their daughter’s best interests.

A series of events led up to the day in November 2001 when the Palo Alto Police found Nancy wandering and took her against her will to be evaluated by doctors at Stanford University hospital. Using an allegedly phony Temporary Restraining Order, (TRO), signed by a Palo Alto police officer and not a judge, a TRO that was allegedly never actually filed in the court record, they successfully prevented Jeff and Elsie from having contact with their daughter Nancy for two weeks.

When the TRO expired without a hearing and a court ordered her to be released from the 5150 detention, Stanford allegedly violated the order and gave her to SARC to hide her in an undisclosed location without a court order for nine months, where her parents say she suffered a broken collarbone and was forced to take inappropriate psychotropic medications, supposedly for her autism. SARC’s psychiatrist allegedly said he thought he could make her able to talk by giving her Risperdal.

Constitutional Rights Violated?

According to their main attorney, Dave Beauvais, there are two main issues that lie at the heart of this ongoing case. The first is the issue of the Golin’s losing all rights to act in their own daughter Nancy’s best interests and the second is the issue of whether a person who is disabled has the same protection under the U.S. Constitution as a non-disabled person does.

The two issues the state brought as grounds for removing Nancy from their care were the fact that she wanders away and the fact that the Golins disagreed with the doctors at Stanford University about which medication was best to prevent Nancy’s seizures.

Autistic Daughter Wanders Away from Home and is Taken into Custody by the State

Nancy Golin during happier days. Photo supplied by family.

Wandering away from her parents was the catalyst for the state to take Nancy.

The events of November 15, 2001 began when Elsie left Nancy alone briefly in their minivan while using the rest room. Despite their continuous efforts to contain Nancy, her perseverant nature prevailed and she got out and wandered off.

Jeff Golin stated:

“No matter how vigilant we were, it was nearly impossible to prevent 100% of the time. But we kept it down to a minimum. When we were home, we always kept a padlock on the front door to our apartment to keep her inside with us. We adapted our living space in many ways to meet this challenge that other families with non affected children could not. Yet she still found amazing, clever and unforeseeable, even sometimes amusing ways of escaping to go out walking at any time of day or night. We learned from each experience how to better deal with it.”

After unsuccessfully looking for her for ten minutes, the Golins decided to enlist the efforts of the Palo Alto police. Nancy appeared seemingly by herself less than an hour later. Police officers told the Golins that they needed to take Nancy to Stanford University hospital for evaluation. The Golins were told they could come pick Nancy up later at the hospital. They allegedly said nothing to them about holding Nancy on a 5150 hold, or detaining her, so the Golins cooperated.

The Golins were not allowed to transport her to the hospital. When Nancy got to Stanford, she was placed in a psych ward as “gravely disabled,” and the Golins were not allowed to see her or speak to her doctors.

Wandering is very common among autistic patients as is reported in Austism Speaks:

“It’s important to see that the high frequency of wandering in affected children contrasts to relatively little wandering in their unaffected siblings,” says Autism Speaks Assistant Director of Public Health Research Amy Daniels, Ph.D. “This clearly communicates that wandering has little to do with parenting style and more to do with the nature of a child’s autism.” Dr. Daniels co-authored the study, which she helped conduct before coming to Autism Speaks this year. (See Dr. Daniel’s related blog here.)

Nancy allegedly continues to wander in the custody of the State.

Disagreement Over Which Doctor’s Advice to Take on Medication

The Golins followed their neurologist’s prescription agreeing Nancy should be taking Phenobarbital instead of Dilantin, and her mother says she always gave Nancy this medication as instructed. They agreed with Nancy’s neurologist that the best course of treatment was a higher dose of Phenobarbital as opposed to Dilantin because of the devastating side effect of bone loss.

Nevertheless, in 2000, an intern at Stanford Hospital ER allegedly reported the Golins to Adult Protective Services, claiming the prescription dosage was “wrong.”  He allegedly said to the Golins:

“Either you’re not following doctor’s orders or the dosage is wrong.”

Even the doctors at Stanford allegedly disagreed with each other about which medication was best and at what dosage.

Now that Nancy has been on Dilantin for fourteen plus years her spine is bent over and she has had her teeth replaced more than once.

Photo taken of Nancy Oct. 2015 by Jeff Golin at the Pruneyard Center Shopping Center where they have their supervised visits.

Dilantin drug precautions:

Dilantin: This drug can also increase your risk for developing osteomalacia (weakening and softening of bones) and Hodgkin lymphoma (cancer that begins in the lymph nodes). You may also experience swollen lymph nodes while taking Dilantin. You should discuss these risks with your physician. Dilantin may also cause swelling and bleeding of the gums and could increase your risk of gum damage. You should discuss proper ways to care for your teeth and gums while taking this drug. (Source.)

Nancy Cut Off from her Family – Placed in Psych Ward

When Nancy was taken away she was upright and happy. Today she is depressed, being housed in a group home somewhere 155 miles (310 round trip) from her family and the Golins are only allowed to see her in supervised visits once a week at a place that is not her residence. They are not allowed to talk to Nancy’s caregivers. Even Dave Beauvais, Nancy’s attorney, and Nancy’s court appointed guardian ad litem, Nancy Delaney, had to get a court order to be allowed to visit their client Nancy at her residence for one hour.

Nancy ended up being placed in a dangerous psych ward involuntarily among patients who were a danger to themselves and others. Initially she was placed under the Section 5150, pronounced “fifty-one-fifty,” of the California Welfare and Institutions Code (WIC) which authorizes a qualified officer or clinician to place a 72 hour involuntary hold on a person suspected to have a mental disorder that makes him or her a danger to him or herself, a danger to others, and/or is gravely disabled.

According to Jeffrey Golin, police used a “phony court order” and took her to be seen by a Stanford University psychiatrist who prescribed seizure medication that the Golins had researched and decided was not appropriate due to the long term effect of bone decay and tooth loss. The Golins were not allowed to know where Nancy was being held for 9 months.

Medical Malpractice in Administering Drugs?

Photo supplied by family.

In building their case against the Golins, Palo Alto Police, APS and SARC allegedly made the claim that a burn on Nancy’s foot was caused by her parents and was proof of their neglect. However, the parents claim that the third degree burn was caused by Stanford University medical staff in the hospital where they administered Dilantin (phenytoin) through her foot. According to the instructions given to nurses and pharmacists on the Massachusetts General Hospital website:

“Avoid administration via hand, wrist or foot. Use best access site possible (large bore vein). If unavailable, consider oral route, or another agent. Assessment of IV site is critical, particularly with the alkaline pH of Phenytoin. Avoid infusing Phenytoin via IV in the hand, wrist or foot.”

Disability Center Allegedly Admits to Violating Law

At the civil rights trial that ensued, officials from the San Andreas Regional Center (SARC) allegedly stated that they knew that they had violated the law.

The trial lasted two months, from March 14 to May 5, 2015. Despite the alleged admissions of wrong doing by the San Andreas Regional Center director, the jury deliberated for one hour. The Golins have appealed and are waiting for the results of the appeal based on poorly administered jury instructions.

The Golin’s attorney Walter Pyle reportedly asked the director Kinderlehrer:

“How long did you think you could keep Nancy without a court order placing her with the agency?”

SARC’s manager allegedly admitted that they had a bed ready for Nancy before they had a court order legally taking her into their custody. Nancy was kept in a group home initially where it was allegedly discovered they were using restraints to keep her bound so she couldn’t wander.

Discrimination Against People with Disabilities?

Nancy with her mother on a supervised visit. Photo supplied by family.

As a result of the time spent in the care of the state of California, it appears to many people associated with this story that Nancy was taken away from her parents not as the results of bad parenting by the Golins, but instead because of a stigma and an arrogance in this society that parents are not as qualified to care for disabled children as bureaucrats are.

Nancy allegedly continues to wander. She reportedly continues to have break through seizures on Dilantin. Her parents say that she is doubled over physically now because of the bone loss in her spine, and her teeth have had to be replaced. She sees her parents infrequently, and is reportedly depressed and is being forced to live away from them.

Nancy clearly is asking to go home with the Golins by taking their keys from them and trying to get into their car when they visit. For 31 years the Golins claim that they have made difficult choices for Nancy in her best interests with love and sacrifice as good parents do. Each time allegations were brought up against the Golins they were allegedly unfounded or unsubstantiated. Doctors disagreed about what dosage to put her on and what medications were best.

But as Jeff Golin says:

“Once you are accused you have to stay accused. They can’t be wrong. Stanford University has too much at stake to protect their preeminence in the world. Their prestigious reputation.”

A Gross Violation of Civil Rights?

The Lanterman Disabilities Services Act is a part of the California legislation protecting persons with developmental disabilities and guaranteeing their right to services that will enable them to live like people without disabilities. According to the Lanterman Act, Nancy has the right to live where she wants and has the right to choose with whom she wants to have relationships.

It is noteworthy to point out that the day program Nancy is now enrolled in is paid by the state $6000 a month. The Golins are billed for their supervised visits. The state has allegedly placed a lien on the Golins for $900,000.

Is Nancy Involved in Experimental Drug Trials?

The Golins allegedly have no right anymore to see Nancy’s medical records, but they suspect that she is in a medication trial.

One of the experts for SARC that testified at trial spoke about the benefits of electric shock therapy. Without knowing what exactly the state doctors are doing with Nancy, it is disconcerting to say the least to the Golins that they had an expert who is promoting electric shock therapy.

Family Wants a New Trial

Jeff Golin wants the world to know about their story and states:

 “We had a two month trial this year, but for reasons we still are not certain about we lost. We have appealed and are on hold while we raise the money for the transcripts. Some of the assertions of unrestrained authority by opposing counsel were truly shocking to anyone calling themselves an American, and if they provide us with an accurate transcript it ought to be an outrage, but we aren’t getting much coverage.”

The family has put up a Facebook Page to support Nancy coming home.